Adjusting to life with recently diagnosed three year old with Acute Lymphocytic Leukemia (as told by his mom, Michelle)

6.01.2005

we went to san antonio (me, my mom, caleb & caitlyn) yesterday for the ultrasound & came back to del rio. went back to san antonio today for the results (we didn't spend the night cause i don't think i could stay sane with the kiddoes all afternoon & night cooped up in a hotel room). caleb has been acting out BIG TIME!!! he's been very agressive & really dislikes me right now (he hits & talks back). it's been hard cause he was never like that before. i attribute it to me being the bad-mommy-who-gives-yucky-tasting-medicines. but anyway, i'm dealing with it. this is kind of wrong but i kind of felt better when he started acting out with my mom (hehehehe...sadistic, huh?). but anyway, turns out those funky numbers with his liver were REAL!!! scary. doc said that those huge numbers (from the cbc draw last wednesday) were cut in half by the time the next cbc was done on friday so whatever it was started to clear up. doc said that caleb was definitely exposed to something as he found remnants of a virus that can cause mononucleosis & he mentioned the epstein-barr virus (yes, the kissing disease...i thought i wouldn't have to worry about that til high school! :) ) so he's gonna run more tests. the ultrasound came back clean (whew-big relief!); hepatitis was ruled out (which is a risk with blood transfusions of which caleb has already had 3 bags thus far). he'll let us know in a few days what the results are. it may be that caleb was fighting off an infection (i tell mom that God's working his little miracles) cause because of chemo, caleb shouldn't have had the antibodies to fight off an infection, yet he came out just fine. i asked doc if the episode a couple of weeks ago (where we eventually thought dehydration/hypoglycemia) could be related & he said it's quite possible... i'm not worried cause caleb has been just fine & then some. he's more hyper than caitlyn again. mija is doing ok. he's been very bossy with her & i have to encourage her to stand up to him & not let him try to manipulate her. we're trying to work with his behavior. we ran into a young mother at the office who's 5 year old daughter is into her 10th month of leukemia (& of course, my kids are quick to point out...look at that little boy mommy...thank goodness caleb is nearly bald too or i would've been even more mortified than i was!)so my mom got to talk to her cause i was called into the room already & my mom said that the mother went through a period of agression with her 5 year old as well so I guess it's just a phase of the leukemia...that her daughter just recently started getting back to "normal". that poor lady...had to move in with her parents to make it financially & is divorced with her ex-husband in iraq right now. it makes me even more grateful to know how lucky we are to have sooo much support from everybody!!! i asked my mom how other people do it...those that don't have any kind of family or financial support. it makes me feel bad because i can only imagine how difficult it must be for them...
Comments:
i love you dah-veed (it's so nice to have a dr in the family!!!) & thanks ab!
:)
 
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