ALL about Caleb

yay! no decadron. no yucky drugs. only his antibiotic & antifungal which are cake!!! caleb had a great day at the dr's office today. had to put him on a behavioral chart day before yesterday cause his behavior has been out of control (talking back, yelling, oppositional defiance). he even let the nurse access him w/out crying. you better believe he earned his sticker for that!!! i'm so proud of him. he was a big boy today. he even behaved at the mall. he was supposed to have a spinal tap today. there was a mixup & i thought we were gonna have to spend the night (he's supposed to go w/out food/drink for 6 hrs for the spinal tap but he ate breakfast). since his counts were too low they couldn't do the procedure anyway. the downside is that we have to go back next monday. his counts just fluctuate. the cancer drugs he takes keeps them low, it's just part of the process. i have to keep reminding myself that the drugs are good..that's what's keeping him with us. people will ask how he's doing from time to time & i just reply he's doing great, which he is...but i never go into detail about how he has his ups & downs. gratefully, not too down-just w/ his behavior and his moods. a couple of weeks ago his energy was low...i wonder if that's why his counts were low-maybe at that time he caught something & his body was fighting it...he had looked slightly pale to me & not as hyper. the main thing is no fever. fevers scare the crap out of me.

all's well right now. not for long. guess what's coming up...decadron week...actually, it's not until the 21st but i'm already dreading it. he still has remnants of the cough. i thought it had gone away. i forgot to mention, his thing right now is the show ghosthunters on a&e. i love that show. turns out my son shares my taste. i'm probably gonna buy us some of the clothing from the website for x-mas. he's gonna love it!!! we ran into a guy chris knows at wal-mart who looks similar to the lead ghosthunting guy on the show & caleb was like "can i go with you to your house?" it was hilarious!?! the guy didn't have a clue to what ghosthunters was & caleb was like "he's from ghosthunters". the second choice on the make a wish app was for meeting the power rangers, but i'm gonna see if he would want to meet the ghosthunters instead in case disneyworld doesn't pan out. caitlyn's been really good too. she's at the age where she loves ponies & wants one of her own. they went to my school's fall fling & they got to ride a pony. she took to riding it as if she was born on the saddle. it was too cute!?! my aunt's sister in law has a miniature horse at her ranch & has invited us in the past to go. we're just waiting on the go ahead from the doctor...currently there are no restrictions but he still has yet to ok daycare (which i don't want to do just yet, with the cold seaon just arriving) & a long time ago he told us not to get new animals...but i wanted to see if the ranch would be o.k...