Adjusting to life with recently diagnosed three year old with Acute Lymphocytic Leukemia (as told by his mom, Michelle)

12.15.2005

caleb lost his blankie at mr. gatti's this evening. we were so sad!!! it was like losing a family pet or something. he was crying when we tried to explain to him that it might not be returned. he's had it forever. it's actually a towel but it was always big enough to be a small blankie. it's pink & white striped. i think it actually used to belong to caitlyn but somehow he ended up becoming attached to it. we never put much weight into girl colors/boy colors or girl toys/boy toys. being twins, we have them share everything. (for the record, he prefers boy toys & she prefers girl toys!) so anyway, i left my name & number with a worker & we got a call back later that a girl found it. i was so excited!!! i'm washing it right now & caleb's gonna be so excited when he wakes up in the morning. there's like this whole thread on it on del rio soapbox. the link is in the sidebar. you don't need to register to view... my caitlyn, caitlyn, caitlyn...she's starting to display behaviors that mimic her brother when he's on a rampage. she threw some toys earlier this evening. she's been crying (actually more like screaming like a banshee) for such minor things. she's back to being scared of balls and balloons. she even freaked out with a deflated balloon that caleb was trying to blow up. i think she's becoming more confident in herself as she's maturing into a pre-schooler & while she's at it demanding more attention. i try to give her more attention. I think that's what my new year's resolution is going to be. Try to be a better parent & find ways to spend more meaningful time with the kids. I try to do resolutions that help me be a better person instead of giving something up like soda or junk food. It feels more meaningful to me that way & is easier to keep. i don't think i made a resolution at all last year.

12.14.2005

jackpot, yay! the spinal tap was done without a hitch. caleb's back on decadron... don't know if i mentioned, but i had to put him back on a chart. he is off the wall!!! i think a large part is personality-he's just a hyper kid by nature & it gets him in trouble-and he's so loud so it attracts stares. how far away is adolescence? yikes! i try so hard to keep my patience with him. i feel like i'm always getting after him. (he told my mom that i'm mean-how sad is that?). i love our little tradition though. every time i take him to san antonio, i make a stop at sam's right before we leave & we eat pizza and share a soda. we talk about the things we see at the store. then on the way out, we stop at the last convenience store & buy white powder donuts. i love that bonding with him. it's such a great feeling!!! caitlyn got to spend the evening w/ grammy. they went to the mall. my mom said caitlyn saw a lady that resembled me (short hair, stature) & caitlyn ran to her yelling "mommy!" & got freaked out when the lady turned. my mom said she wouldn't stop crying. my poor baby girl! i hugged her alot this evening & told her she's always in my heart & to always remember i'm in her heart, that way we're always together.

12.08.2005

counts still aren't high enough. dr said not to give him his antibiotics either. nothing we can do about it. just have to wait on his body to adjust... he's had a slight cough that sounds full of phlegm. have to go back on wednesday. hopefully that'll be the day!!!

12.05.2005

i just realized i hadn't posted anything about the spinal tap. caleb's counts were too low. so we were rescheduled for the following monday. counts were better but still too low. we're going back this wednesday. cross your fingers! (although i'm not looking forward to the meds that he'll have to go back on). his behavior is better. i don't know if it's the chart or his not having had his chemo drugs the past couple of weeks (on stand-by until the spinal). caitlyn's doing great. they're looking foward to christmas. me too. i can't wait to see my brother & sis-in-law & any other family that come to visit. if i don't get to make any other posts before then, happy holidays & merry xmas to everybody!!! :)

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