Adjusting to life with recently diagnosed three year old with Acute Lymphocytic Leukemia (as told by his mom, Michelle)

4.15.2005

Well, the kiddoes are asleep. Today was hard. Caleb wanted to eat EVERYTHING. The frustrating thing is he'll take one bite out of what I make for him & then asks for something else. And Caitlyn has regressed with her potty training. I was so excited right before Spring Break cause I thought we were finally through that hurdle. She's acting out so much. She has this habit of wanting to cling to my ankles at the worst times, like when I'm preparing Caleb's meds. Caleb has a diaper rash. It worries me. The smallest things can't be taken for granted because the greatest risk to him right now is infection. I think he got it from a couple of cases of loose stool & his quick weight gain from the steroids. If he gets a fever I have to call the doctor right away. Actually, I can't give him any OTC meds unless I have the doctor's approval. He still has some hair left. It reminds me of the fuzz that baby birds have on their bodies. This morning when he woke up he was saying, "Look at all my hair, it's falling out." It doesn't seem to bother him. I had a talk with him a few weeks ago about it. The nurse said that the hair loss doesn't seem to bother boys as much as the girls. The hair is everywhere. It falls in his food sometimes when he's eating & he freaks out about that.
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