Adjusting to life with recently diagnosed three year old with Acute Lymphocytic Leukemia (as told by his mom, Michelle)

5.14.2005

I've heard of people mention the taste of adrenaline but I never experienced it myself until yesterday morning. Boy, what a scare!!! Since Chris is now on mids we've started going to sleep a little later to wake up a little later. Well, when I answered Caitlyn's calls at about 10 am I noticed Caleb was being a sleepyhead. Usually both are sitting up in bed talking to each other or just playing by themselves quietly. So anyway, I tried to get him up but he was really weak. He couldn't stand up in his crib. So I took him out & he was kind of floppy. It was very difficult for him to keep his neck up & he kept wanting to go to sleep. I started getting that bitter taste & I screamed for Chris. I left Caleb on the floor & Chris was already at his side by the time I got up & ran for the phone to call our doctor (who wouldn't it figure- was not available! so we got instructions from the on-call doctor). We were told to go to San Antonio but I was freaking out & told Chris I was afraid Caleb would fall asleep on the way there. We decided to take him to e.r. here. He asked for lots of water-even at the e.r. & he asked for popsicles, which was strange cause even though he's a kid, you'd think he normally likes popsicles, but he hasn't in a long time so I was surprised when he ate 2 of them. I'm thinking maybe his blood sugar was really low. By the time we got to San Antonio he was fine but needed to be checked out anyway. When I was comparing his CBCs I noticed his white count more than quadrupled since his last visit on the 10th so I called the doctor & he said that was normal...that maybe his body was trying to fight off an infection. Caleb slept with us in bed last night. I woke up every 30 minutes checking his head for a fever. Thankfully he woke up as if yesterday never happened. Actually, I take that back...he did say this: "Thank you for taking me to the doctor mommy."
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