Adjusting to life with recently diagnosed three year old with Acute Lymphocytic Leukemia (as told by his mom, Michelle)

6.16.2005

I'm pulling my hair out!!! Caleb started his steroids (dexamethasone aka decadron) again yesterday & today he was showing it. He's been VERY irritable w/ some major mood swings. Literally from one second to the next he'll be screaming his head off & then he'll be very loving. My poor baby. It's hard knowing it's not his fault when he goes Dr. Jeckyll & Mr. Hyde on me. He'll be taking them for 3 more days (5 days in a row every 28 days is the cycle for the steroids). His liver seems to be fine & his counts are stable. I forgot to share a story about yesterday's ov. Whenever he's accessed, the nurse has to prepare it first by cleaning the port cath area on his chest with betadine (sp?) swabs & then alcohol swabs. Caleb has started "helping" her by cleaning the other side of his chest with the same things (he even uses a glove like her). She has a New York sounding accent & she'll tell him "Now stay out of my business" when he gets too close to her area. So yesterday she moved her hand close to his area I guess & he tells her "Stay out of my business Nurse Marion". We all started laughing. That's so Caleb though!
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