Adjusting to life with recently diagnosed three year old with Acute Lymphocytic Leukemia (as told by his mom, Michelle)

7.13.2005

here we go!

mijo had his lumbar puncture today. we got up at 4 am. hit the road at 5:30 & the kids only took about an hour nap. caleb was npo (no food/drink until after the lp)so he was super cranky...nurse said she wasn't going to put him under cause if she did he would wake up all crazy so he cried himself to sleep asking for cookies & chocolate milk (i wanted to cry at this torture but i understood the reasoning). he slept for like 3 hours-he had never done that before so we ended up staying late. he had the iv push of vincristine & his iv drip of doxorubinose (looks like koolaid)& we finally got to leave at 5:30. mija was so good!!! she aims to please & thrives on praise for her good behavior. she's such a trooper. she leaves with grammy when asked & doesn't make a fuss. caleb has to go back on monday to the methodist ch/ren's hosp to get two shots of asperiginase (PEG) which contains like a molecule of antifreeze in it. he gets the shots in both thighs at the exact same time. he had that at the very beginning of this whole ordeal. that is NOT going to be fun. then he goes back on wed for his regular visit. then we go back (8/8) monday through thursday for his heavy chemo & then the next week tuesday through friday. then we wait for him to get better for several weeks cause his counts will be superlow (induced by the chemo which gets the bad stuff but also, unfortunately, gets the good stuff too). my poor baby!!!! then he has to stay isolated for a month after that to make sure he recuperates and (God willing) if everything goes smoothly he'll be fine by October. we're thinking we might not need a sitter if Chris is able to modify his work schedule so that he can watch them in the a.m. & go to work in the p.m. we'll see.
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