About Me
- Name: Their mommy
- Location: Del Rio, Texas, United States
I'm a twin, love TAPS on Ghosthunters, like to eat mac & cheese, hate my meds (especially the decadron), like to play drums & can do metal horns. Yeah!
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Adjusting to life with recently diagnosed three year old with Acute Lymphocytic Leukemia (as told by his mom, Michelle)
7.15.2005
woo hoo, what did i say? here we go again, & boy was i right!!! he's still not eating very much. he ate a small amount of cereal in the a.m. & had a little bit of water. tried to give him some supplemental drinks (pediasure the other day) & nestle's breakfast drink but no luck. tried to give him some with a syringe. it's funny that he doesn't spit out the liquid meds but he'll spit out the breakfast drink...that shows he knows how really important the meds are even though he's too young to understand his illness. for lunch he didn't eat anything, i was happy when he finally ate toast this afternoon. i called doc's office to let them know. & that's not all...he wants to be carried the whole time!!! my family takes turns carrying him. we went through this last time but he was so weak that he would sit between my legs the whole day & we would watch cartoons together. i think that's what they mean when they say he's gonna hit rock bottom; he'll be super weak around mid-august cause he'll have just finished his 2 wk intensive treatment.
so anyway, his behavior is crazy right now. it's not his fault at all, poor baby. in the past couple of weeks i've not been a patient mother but it kills me to see him go through this. he throws his tantrums & i can't let the discipline fall altogether even though i want to. i was being very firm with him cause when he beats this thing we don't want a spoiled healthy brat (that's the advice nurse gives us & a really nice salesman from dodge here in del rio who told us his son had leukemia several years ago...oh yes, we got a durango...same pymt as the van, nothing down, so it's like we're not skipping a beat financially yet we have a reliable vehicle now which is very nice...the van was reliable yet getting to the point where we didn't want any surprises). caitlyn has started acting out too. throwing temper tantrums, that's so unlike her but i'm not too surprised cause she pulled that last time...it's so hard on her, w/ caleb getting all the attention.
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