Adjusting to life with recently diagnosed three year old with Acute Lymphocytic Leukemia (as told by his mom, Michelle)

10.03.2005

counts are super up...yay!!! white blood cells had been lingering at 1.0 for a long time & now they're 3.5...granulocytes (infection fighters) are at 50% which is pretty awesome, considering...and caleb isn't pale anymore & is eating (not very much mind you, but it's something) meat (chicken) again. he still doesn't touch red meat (he's still picky but hopefully we can work on that). doc doesn't want to see us for 3 weeks. yay!!! had a scare though. forgot decadron makes him super constipated. he was struggling. it was huge!!! i freaked out cause i thought he was going to have a hernia. really. chris walked through the door as that was going on. i had been sitting with caleb for about half an hour when chris took over. my poor baby was in pain. it sucked. he usually takes miralax (stool softener) every other day. we're gonna step it up to everyday. he was very swollen. it scared me. i had chris page the doctor (i love caleb's doctor & nurse-they are ALWAYS immediately available...they really care)& poor doctor was already asleep at 9 but he told chris that caleb should be fine & if it was a hernia we would know cause he would be in severe pain. and i can't leave poor mija out. she gets left out though w/out anybody realizing. we try to make it equal but it's so difficult. caleb demands so much attention. every chance we get, we try to give her over attention to try to make up for it...she's also very independent which makes it that much easier to give her less attention (she's been dressing herself for a year already) & she finds things to occupy herself (coloring, computer, dolls, puzzles, movies). yup, all these she does by herself. she can maneuver the mouse on the computer to play her "kids games" on nick jr. & gets her puzzles (24+ pieces) & figure them out in a heartbeat (even new ones) & selects the vhs or dvd movies she wants & puts them in the vcr or dvd player in her room. my poor baby girl. i hope this doesn't have long term effects on her behavior later down the road.
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